Tuesday, February 28, 2012

Meet my new LinkedIn friend!

It is possible to "meet" the nicest people through social media! Kelley Ward and I connected through the Mom's Choice Awards group on LinkedIn and instantly "clicked" (too bad she lives so far away!).  She's a mom of 3 boys and well-qualified to write about parenting and child development--Kelley has experience in pediatric nursing, as well as a PhD in family relations.  She's a free-lance writer at Hubpages.com, and sent out a post looking for stories about parent/child relationships and health issues.  I noticed that in addition to several great parenting articles (Parenting Boys, Raising Creative Kids, Teaching Children To Be Assertive, Dealing with Bullying...check out Kelley's work here), Kelley is also a Type 1 insulin-dependent diabetic, and knows first-hand what it's like to deal with a major medical challenge while raising her 7, 4, and 2 year-old boys.  As if her plate wasn't full enough, Kelley also writes nursing textbooks and study guides, so I was super flattered when she was kind enough to take an interest in my book. 
kelleyward profile image

 
Kelley has such a positive "attitude of gratitude", which she shares on her blog.  In "Life is Like a Blog of Chocolate", Kelley shares her personal and professional expertise on parenting, health, and relationships, but emphasizes the "sprinkles" in life--the special blessings and life lessons that add significance and meaning for her.  I just love this outlook, and was so appreciative that Kelley felt my book qualified as a "sprinkle", worthy of mentioning in her blog.
Kelley wrote a lovely article about Where Did Mommy's Superpowers Go? on HubPages, but I was particularly glad that her 7 year-old son enjoyed the story, and how it helped him understand his mom's fluctuating blood sugar levels:
"After I read the book to my now seven-year old son he said, "I liked that book. It was kind of cute and funny." I asked him if he could relate the story in the book to life with me as a diabetic Mommy and he said, "Yes when your blood sugar drops the bad cells come in and make you tired and irritated. That's when you lose your superpowers". His response demonstrates that this book can help children understand the challenges that occur when a parent or family member has a serious illness or chronic disease."
To see Kelley's photo, I can't imagine her ever being "tired and irratated", but all moms have their moments!  I hope you'll enjoy reading her work, and I look forward to seeing what parenting topics she tackles next!

Sunday, February 12, 2012

A Labor of Love

Once the initial shock and fear have passed after a serious diagnosis, it's time to discuss treatment. In addition to learning about the medications to be used, the side effects to expect, and the risks involved, a patient facing a critical illness wants to know how successful treatment will be. Sometimes doctors know, and sometimes they don't. We worry about our prognosis, our children, life as we know it. Information is processed, and we decide to move forward, hoping and praying for the best possible outcome.
But what if, in addition to the stress and emotional turmoil brought on by a life-threatening disease, you didn't know if you could afford the costs associated with treatment? What if there were only a handful of doctors in the world able to treat you, and you couldn't afford to see them? What if a potential cure required you to temporarily live elsewhere, and you couldn't afford housing? Unfortunately, even with adequate health insurance, a major health crisis can present a financial burden that can be a significant obstacle to getting well.

Travel, housing, and incidental expenses are just a few of the costs Secure Harbor helps take care of in an effort to allow amyloidosis patients to receive the best possible care. Secure Harbor is a non-profit organization developed and run by Connie and Tim Hornbeck of Stow, OH to help support amyloidosis patients and their families.



Tim Hornbeck is an amyloidosis patient who underwent a bone marrow transplant in 2008. Since then, Tim still struggles with the disease, and is currently undergoing further treatment with a regimen of chemotherapy and steroid medication. In the midst of his own battle with this rare, life-threatening disease, his wife Connie makes it her full-time commitment to reach out and help other amyloidosis patients navigate the costs of travel, lodging, and meals...costs not reimbursed by health insurance, no matter how necessary they are to the treatment of amyloidosis.

There are not many medical centers in the United States equipped to properly diagnose and treat amyloidosis. Patients come from all over the world to be treated at Boston Medical Center, the Cleveland Clinic and the Mayo Clinic, just to name a few (for a complete list of centers treating amyloidosis, click here).  Through fundraising and donations, Secure Harbor makes it possible for patients to obtain the treatment they so desperately need.  In the past three years alone, Secure Harbor has helped more than 25 families travel to Boston Medical Center and the Mayo Clinic, and stay in hotels and patient housing for the duration of treatment.

According to Connie, the average cost of helping a patient and one caregiver can run anywhere between $500-$2500. When possible, they rely on Miracle Flight for air travel, which is approximately $100/round trip each for patient and one caregiver. Fortunately, every year Secure Harbor receives a grant of $5000 from the Chip Miller Amyloidosis Charitable Foundation (http://www.chipmiller.org/), and in 2011 alone, Secure Harbor was able to raise $12,000 in fundraising events. Neither Connie nor Tim take one cent in salaries, and never use donated funds for their own travel or Tim's treatment.
  
Here is the story of how Secure Harbor helped Joe Bateman, written by Joe's wife Mary:

Joe and I wanted to say how grateful we are for Secure Harbor and all they have done for us. Their help started back in July of 2009 when my husband was diagnosed with Primary Amyloidosis. I had lost my job a few months earlier due to the economy and without Secure Harbor's help I do not know how we would have survived financially during Joe's stem cell transplant at Boston Medical Center. Secure Harbor helped us with lodging and travel expenses when Joe was first diagnosed so we could travel to Boston Medical Center for an evaluation to see if he would be eligible for the stem cell transplant, and then again when we traveled back to Boston for the Stem Cell Transplant. Secure Harbor put us into an apartment for almost two months while Joe was going through his transplant, I don't know how we would have ever done it without Secure Harbor. Their generosity has continued through these past 2 ½ years not only during treatment did they help us but also for his follow up appointments every six months. We could never do enough for Secure Harbor for all they have done for us, so we have had raffles and we have had an annual horseshoe tournament for the last two years to try and raise money to give back to Secure Harbor so they can continue to help Amyloidosis patients. Not only have they helped us financially but Tim and Connie have helped us spiritually and have given us strength to continue this fight against this horrific disease.
Our thoughts and prayers are with all Amyloidosis patients and their families.
God Bless, Mary and Joe Bateman
  

Connie and Tim are doing amazing, selfless work as they continue to deal with Tim's additional ongoing treatment. So far, Secure Harbor has been able to help 55 families, but has an ambitious vision to support more. As doctors become more educated about amyloidosis, more patients are being properly diagnosed, but many of those can't afford to travel to treatment centers and pay for housing. In the spirit of Valentine's Day, I will be offering a free copy of Where Did Mommy's Superpowers Go? as a thank-you gift for every donation of $50 or more between now and April 30, 2012. Already have a copy? Feel free to pass it on to a friend or family member, or donate your new copy to a school or public library, school counselor, pediatrician's office, child therapist, doctor's waiting room, hospital resource library, oncology center or stem cell clinic. For donations of $100 or more, I will personalize a message and sign the inside cover of the book. Just follow these 3 easy steps: 


2.) Complete the information and hit the button to Review Donation

3.) You will see a small blue link on the left to leave a personal note for Secure Harbor. Click on it, and a text box will open up for you to type your message.
*Type "Where Did Mommy's Superpowers Go?" in the box. For donations of $100 or more, please indicate the correct spelling of the person's name who will receive the book, and I will personalize and sign the copy.

Connie will make sure I get your mailing address and I'll send you a copy of Where Did Mommy's Superpowers Go? Remember, you can receive your free gift anytime between now and April 30, 2012.

As winter gives way to spring, big ad campaigns are underway on TV and in print for walks, runs and other active events to raise money for cancer research. The Avon 3-Day, Komen Walk for the Cure, The Pan-Mass Challenge, and Spin for Hope are just a few of the successful annual events that raise big money for a very well-recognized disease. As you support these organizations, please also consider Secure Harbor, a small but mighty non-profit struggling to enable amyloidosis patients get the best care in the best place, before the disease is too advanced to treat effectively. While many organizations funnel the majority of their donations to research, Secure Harbor uses every cent for the patient and caregiver and the expenses incurred by evaluations, treatment, and follow-up appointments. And as Tim and Connie keep Secure Harbor going strong in the midst of their own battle, their work is truly a labor of love.

Saturday, January 14, 2012

Food as Medicine

Did you start a new diet this month?  Make some New Year’s resolutions to eat more healthfully and exercise regularly?  So many of us start the new year off with the best of intentions to take better care of ourselves, and if we’re lucky, we not only reach a few of those goals, but create healthy new habits that continue long term.  But many of us also know the feeling of “falling off the wagon”; a skipped workout or an occasional treat snowballing into a backwards slide right back into our old, comfortable patterns.  Change can be difficult, even when we know we’ll be better off in the end.
For a long time I started every January with a list of specific diet and exercise goals, striving to eat “perfectly” in order to be that ideal size and weight I felt compelled to achieve.  This annual tradition probably started as a young girl in ballet class, where I was a healthy, curvy girl surrounded by stick-thin aspiring dancers.  My ballet teacher was a former prima ballerina retired from the Boston Ballet, and didn’t weigh much more than 100 lbs. herself.  She constantly found subtle opportunities to “reward” the smaller, thinner girls while making the heavier ones feel their extra pounds were an obstacle to be overcome.  Shortly after she took over the ballet school, we were not only measured for recital costumes, but weighed as well.  This experience had a profound effect on my view of food and the connection between diet and appearance which lasted well into adulthood.
My preoccupation with how my body looked on the outside only intensified during the many years I worked in the fitness industry.  You only have to look at the covers of women’s health and fitness magazines to realize the pressure society places on women to look “perfect”.  As a group exercise instructor and personal trainer, I felt a responsibility to “look the part”, and strived to be a role model for my clients.  For a long time, I was obsessed with my exterior appearance and how diet and exercise benefited my body primarily on the outside.
Until my diagnosis in 2007, I took for granted how healthy I was on the inside.  Despite my body looking perfectly fine on the outside, internally was quite a different story.  Learning that I had an invisible disease which was attacking my organs quickly put things into perspective.  I joke with Steve that the day I heard I needed chemotherapy and a stem cell transplant was the last day I looked at my butt in the mirror.  My diagnosis was a serious wake-up call which quickly shifted my focus from my exterior appearance to my inner health and wellness.  I could no longer take my health for granted just by looking at the size of my jeans, how good I looked in my workout clothes, or how many lunges I could do.  A dietician I had worked with once told me, “We think more about what we put on our bodies than what we put in our bodies.”  I agreed with her, but at the time was more concerned with losing five pounds.  Her words came flying back to me, and I knew I needed to look at food in a whole new way.
Being unexpectedly diagnosed with a life-threatening disease out of the blue is a shock, to say the least.  Particularly for those people who were health- and fitness-conscious to begin with.  Learning about the aggressive treatment and the ways my life would be drastically changing in the near future led to a sinking feeling that I was completely losing control over my body and health.  I thought I had done everything “right”, but suddenly I felt helpless and powerless over my well-being.
One of the first recommendations my doctor made was to control my cholesterol and sodium.  The disease was causing my body to produce excess cholesterol, and too much sodium would only worsen the severe fluid retention I was experiencing.  In addition to the medications prescribed to help control these issues, they encouraged me to follow some dietary restrictions.  I welcomed the opportunity to take an active role in my treatment, and went one step further, setting up a consultation with a registered dietician.  I already knew a lot about nutrition , but now I food was an integral part of my treatment regimen, and I needed to consider food as important as the medicine I was taking.
Sticking to my new low-cholesterol, low-sodium plan empowered me and helped me feel more in control.  Suddenly I felt compelled to investigate other ways I could take charge of my health, optimize the success of the treatment, and make my body as strong as possible to not only withstand the chemotherapy, but to recover afterwards.  I did some research on homeopathic remedies, and with the help of the very knowledgeable staff at my local health-food store, added some natural supplements to complement the medications I was on (be sure and check with your doctor first before taking any over-the-counter or herbal vitamins or supplements to avoid adverse reactions or side effects).  I started reading everything I could about optimal nutrition, and the relationship between food, environmental toxins, and disease.  I watched TV programs and documentaries, and started integrating some new foods and healthy habits into my plan.  For the first time I learned that it’s not only what you eat that’s important, but what that animal ate, or how that food was produced that has just as much impact-if not more-on our health.  I also noticed that I was adding and incorporating more new and healthful foods into my repertoire more than I was limiting or avoiding them, as I had traditionally.  The simple act of telling myself what beneficial foods I could have rather than what “bad” foods I shouldn’t have was a dramatic shift in my old thinking.
Here are some of my favorite tips and resources from the health gurus I respect the most.  As with any program, check with your doctor first before making any changes.  If you can, start with small shifts you can incorporate as a family.  Getting everyone on the same bandwagon creates a circle of support, and also teaches kids healthy habits early on.
Go organic:  I know what you’re saying:  “But it’s so expensive!”  But so is the cost of medical care due to illnesses caused by the chemicals sprayed on our food.  Save money by shopping at local farmers’ markets (plus you’re supporting family-owned, small businesses), shopping in season and on sale.  Go to www.foodnews.org and download the Clean 15 and The Dirty Dozen lists as a starting point.  Consider organic milk and dairy products, which don’t have growth hormones.
Become a “less-meat-atarian”:  I admit it, I like meat.  I can’t completely give it up.  But I do believe there are benefits to a vegetarian or vegan diet.  Instead of shunning meat, I make one vegetarian dinner a week, stock the fridge with cut veggies for snacking, and make produce the center of most meals.  Don’t want to eat all those fibrous veggies?  Kris Carr is the queen of detoxifying green juices.  After her own stage 4 diagnosis of a rare, incurable, untreatable cancer, Kris adapted a radical new diet, which she shares in her documentary and book, Crazy, Sexy Cancer.
Know what you ate…ate:  Cows are not supposed to eat corn…they are made to digest grass.  You don’t even want to know what chickens are fed to make them bigger than normal, faster than normal.  Aside from all the health reasons to eat grass-fed meat, wild fish and organic, free-range poultry, here’s my reason:  I’d rather eat an animal that was happy and cared-for, and put good karma into my body.  The documentary Food Inc. and the book The Omnivore’s Dilemma by Michael Pollan completely changed the way I look at meat.
Cut the crap:  Read labels and steer clear of high-fructose corn syrup, hydrogenated oils, nitrites, nitrates, sugar in the double digits (4g = 1 tsp, so that container of yogurt might have over 4 tsp of sugar!), sodium, and any processed food that can sit on a shelf indefinitely (could that Twinkie still be floating around in me?!)-these ingredients have no positive impact on your health; in fact, they are detrimental.  I read Master Your Metabolism by Jillian Michaels twice.  Surprisingly, it is not a weight-loss book, but rather an eye-opening look at how chemicals in our food and environment wreak havoc on our hormones and immune systems, causing metabolic problems and disease.  This is a must-read…and there’s no screaming.
Trade up:  Don’t just give up certain foods…make a healthy swap so there’s no deprivation!  JJ Virgin is the master at this; she frequently posts great alternatives on her Facebook page.  For example, whole wheat bread for white bread, quinoa for rice, hummus instead of mayo, avocado instead of cheese, sparkling mineral water with a packet of Emergen-C rather than soda, pureed cauliflower instead of mashed potatoes…you get the idea.  Find better alternatives for your favorites.
Sleep:  No regimen in the world is going to benefit you if your body doesn’t get enough rest to metabolize all this healthy food and repair itself.  All the experts agree, 7-8 hours of proper sleep is essential for optimal hormone function and health.  I don’t need to be told twice to get a good night’s sleep!
Eat those “Superfoods”:  Dr. Oz sings their praises—oatmeal, berries, flax seeds, dark chocolate, Greek yogurt, green tea, nuts and legumes, wild salmon—these are just a few of the nutrient powerhouses that seem to come up again and again for many health experts.  Check out Dr. Andrew Weil’s Anti-Inflammatory Diet Pyramid for a comprehensive list of superfoods to incorporate into your diet.
Want to learn more?  Check out more of my favorite resources, and start using food as medicine.  New Year’s resolutions don’t have to be all about what NOT to eat, and you don’t have to be facing a major health crisis to start making choices that nourish and energize you and your family. 
Prepare for Surgery, Heal Faster by Peggy Huddleston
Food Rules and In Defense of Food by Michael Pollan
Eat, Drink, and Be Healthy by Walter C. Willett
You: On a Diet by Dr. Mehmet Oz

Wednesday, December 14, 2011

Book Review, Sunday, Dec. 11 - BaytownSun.com: Lifestyle

What a nice surprise to see my book reviewed in a local paper in southeast Texas! I guess word does get around! :) The review is short and sweet, but if it helps one person find the resource they need, then it's all for the better!

Book Review, Sunday, Dec. 11 - BaytownSun.com: Lifestyle: Where Did Mommy’s Superpowers Go?

Saturday, December 10, 2011

Thank you, Brandeis Magazine!

Just opened up the Fall issue of Brandeis Magazine, where I went to college (yes, I stayed close to home--and hope Jason decides to do the same!).  Don't we all love to get these and check our graduating year to see what everyone's been up to?  Where do the years go--I can't believe it's already been 20 years!  Anyway, I was thrilled to see the nice mention of my book and also a great synopsis in the class notes.  I wanted to share it with you--check it out here.

Monday, December 5, 2011

The Gifts Money Can't Buy

Everywhere you look, especially at this time of year, there are countless opportunities to give back and support those less fortunate.  Whether collecting money, goods, or food, it’s uplifting to see all of the creative and innovative ways people are coming together and supporting their communities. 
But in addition to all of these generous programs, there is an often forgotten yet critical need for donations which can save a life.  The gift of blood, bone marrow or organs can mean the difference between life and death for a seriously ill person, and unlike food, toys, or coats, cannot be bought at any price.  We tend to forget how desperate the need is for these donations, but also how easy they are to give.  Perhaps 2012 will be the year you decide to give the gift of:

Blood:  My new issue of Shape Magazine arrived yesterday, and as I was reading it I was shocked to learn on page 32 that only 3 percent of Americans donate blood each year.  That leaves 97% of our population who do not.  Now granted, a portion of those people cannot give even if they wanted to due to health issues (like me), but what if more healthy people would donate blood?  I required a bag of platelets during each bone marrow transplant, and needed four bags of blood after each hip replacement.  That’s 10 bags of blood products just for me alone!  You don’t have to watch Gray’s Anatomy to know that blood is necessary for transfusions and major surgeries, and there is a huge shortage.  Often a patient can have their own blood collected prior to a big surgery, but if you’ve been sick or have low blood pressure, they won’t allow you to (this is what happened to me).  In the amount of time it takes to linger over a latte at Starbucks, you can donate blood at your nearest hospital or at a scheduled drive.  It’s as easy as a simple IV, and you can relax with a book or work on your iPad.  Afterward, you can help yourself to some tasty snacks.  For more info on how to become a donor, visit www.redcross.org

Organs:  Becoming an organ donor is a simple, administrative process and has the potential to give someone a second chance at life.    Currently, over 112,000 people in this country are waiting to receive a life-saving organ, and the need for donors grows every day.   According to organdonor.gov, a single organ donor can save up to eight lives!  Sadly, 18 people die every day waiting for an organ.  Registering as a donor is simple, and all the information you need is available at www.organdonor.gov.  The next time you find yourself at the RMV, you can register on the spot.  Also, don’t forget to make your family aware of your wishes, and indicate your decision on any legal documents, such as your will or Health Proxy.

Bone marrow:  Fortunately, I was able to collect enough of my own stem cells for both of my transplants, but not every patient is able to be an autologous (their own) donor.  Like a kidney, bone marrow can be donated from a living donor.  For more information and to register as a donor, simply visit http://www.dkmsamericas.org/; a simple cheek swab is all that’s necessary.  DKMS Americas is the world’s largest bone marrow donor center, and does not require any payment to register.

Good Search:  I recently discovered this wonderful search engine which donates money to the charitable organization of your choice each and every time you search online!  It’s as simple as Google, but your search is actually benefiting a deserving organization!  Simply visit http://www.goodsearch.com/ and select the non-profit you wish to support (you can only support one organization at a time, but you can change it before any search).  From the website, you can also use GoodShop and GoodDining, and help raise funds while you shop online or make restaurant reservations.  From the homepage, you can download the GoodSearch Toolbar to display across your screen instead of Google, so every search automatically benefits the charity of your choice.  BRILLIANT!!!

Where Did Mommy’s Superpowers Go?:  My book is often purchased by newly diagnosed patients who have small children, or as gifts from friends and family members for someone going through a health crisis.  But don’t forget this book is a useful resource for a school or town library, a school nurse or guidance department, teachers, pediatricians, hospital social work and oncology departments, support groups, or child therapists.  Support your independent bookstores and shop local by picking up a copy at Willow Books and CafĂ© in Acton, or The Paper Store in Acton, Maynard, or Sudbury.  If you prefer to shop online, you can order a copy at www.tinyurl.com/buymommypower.  Of course, the book is available at Amazon and BarnesandNoble.com as well.

Helping a Brain-Injured Person - Part Two

Last month, Dr. Kerpelman described exactly what a traumatic brain injury is (TBI), the signs and symptoms to look out for, and what to do if you suspect an injury has occurred.  Explaining to children that a loved one may have "pieces missing" after hurting their head is a simple way to convey the changes in memory, language and behavior they may find confusing.  In this month's article, you'll learn the challenges a brain-injured person faces, how you and young children can support the patient's recovery, and most importantly, how to help children empathize and interact appropriately and compassionately with anyone we may encounter with a brain injury or other disability.
 
By Larry C. Kerpelman, author of Pieces Missing: A Family’s Journey of Recovery from a Traumatic Brain Injury (Two Harbors Press, 2011)
In Part One last month, I described how my wife sustained a moderately severe traumatic brain injury after falling while jogging, and I described the many symptoms that can result from such an injury to so sensitive (and important) an organ of the body.  It took three emergency room visits, two hospitalizations, one brain surgery, and months of rehabilitation for her to regain the pieces missing from her speech, thought, reading, confidence, and zest for life.  In Part Two below, I discuss some of the things you can do to help a brain-injured person’s rehabilitation.  Even young children can play an important role in the healing and recovery process.
1.)    Support the person in their rehabilitation, whether it’s through reminding that person to do the exercises prescribed by the medical and rehabilitation therapists, helping with those exercises, or understanding and accommodating the sufferer's limitations.  Kids may enjoy being a “personal trainer”, doing the exercises alongside their relative, and coaching them along.
2.)    You can expect that a brain injury may cause disruption or even disappearance of previously normal physical, cognitive, and emotional functions.  Ensure that daily activities can be carried out safely.  A brain-injured person may have balance and strength issues; the worst thing that can happen to a person during the first year after the original injury would be to suffer another fall or bump that injures her head.  Children can also take an active role caring for their relative…they can play “Police Officer”, reminding the person not to forget their cane or walker.  Or they might want to be a “Bodyguard”, and escort their relative by the hand to their destination.  Until the injured person’s physical strength, balance, and coordination is substantially restored, a family member or friend should be near her when she walks or goes up and down the stairs in case she loses her balance.  It’s especially important to follow this practice when outside the house because outside surfaces are a lot more uneven than those in a house.  The brain-injured person should not be hurried to resume any normal activity until she feels ready to do it and do it safely, and even then, a friend or loved one should monitor the activity to ensure that it is indeed being done safely before she is left on her own to do it independently.
3.)    Be patient and understanding.  In the cognitive area, the person’s memory, reading, problem-solving, and logical sequencing of activities may be impaired.  If a person with a TBI cannot remember a person’s name or the name of a place, encourage her to describe the person or her associations with the place.  Using different thought processes may help her to recover the name.  The speech and thought processes of someone with a TBI may be slower and punctuated by pauses as she searches for the next words.  If that person’s speech becomes hesitant because he or she cannot get a word out she is trying to say, you should resist the natural urge to supply the word or finish her sentence for her.  Ask your kids to do the same, although recognize that it will be harder for them not to prompt the person than it will be for you (and it is hard).  Only by working through the cognitive processes to find the word or words and say them will the brain-injured person gain practice in being able to recall or recognize words.
4.)    Remember that the injured person may feel more fragile and vulnerable.  A person who is recovering from a brain injury may very well appear physically to be just the same as before the injury, but there may be incredible changes within the person emotionally.  He or she may think, feel, or act differently than before.  Children may pick up on these new behaviors and become confused.  You can do your part by recognizing this new reality and working with the injured person to accommodate to, and possibly gradually improve, the new emotional state.  Emphasize to children that this is still the same relative they know and love, and the changes they see are part of the injury.  Some changes may resolve over time, and some may not, which might be difficult for children to understand.  Counsel children to be patient and understanding and, even more importantly, model the behavior for them.  Kids do what you do, more often than what you say.   
5.)    Treat him or her with respect, and be ready to help that person.  Above all else, remember that a person with a brain injury is a person first.  Also remember that no two brain injuries are exactly the same. The effects of a brain injury are complex and vary greatly from individual to individual. Those effects will be different depending on the injury’s cause, extent, location in the brain, and severity.  Consequently, I can only give a partial picture here of what to expect and how to interact with a person who has suffered a brain injury.  For more information on other support mechanisms, go to the excellent website of Brainline, www.brainline.org. 


Would you like to use this article for your own website or newsletter?  No problem!  But here's what you must include: 
“Larry C. Kerpelman is author of Pieces Missing: A Family’s Journey of Recovery from a Traumatic Brain Injury (Two Harbors Press, 2011). Dr. Kerpelman is a psychologist and award-winning health care communicator who never would have imagined his writing would be inspired by experiences in his own family.  When his wife suffered a brain injury from a freak accident, the journey toward recovery took his family through the maze of a less-than-perfect healthcare system.  The book inspired by this experience provides a moving story of the endurance of the human spirit, combined with insights about brain injury and recovery and pointed questions about how our health care system functions. For more book details, please visit him on www.facebook.com/LarryCKerpelman. If you or someone you know would like to buy Pieces Missing, you may order it from www.LCKerpelman.com, www.Amazon.com, www.BarnesandNoble.com, or your local bookseller.”
Dr. Kerpelman will be speaking at Sargent Memorial Library in Boxborough, MA on January 24, 2012 at 7pm (snow date January 31).